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My name is VaSean and I am a thirty-one year old hemodialysis patient from Washington, D.C. I was first diagnosed with kidney disease when I was eighteen years old. One of my kidneys was leaking protein and my creatine level was rising. From that point until I was twenty-five, I led a destructive lifestyle. At that point I started to comply with my doctors orders. Then over the next few years I thought I was fine. The end of August in 2003 my kidneys failed as a result of high blood pressure. I never thought that would ever happen to me because I was young and feeling well.
While in the hospital I refused to any type of surgery done to me. I did not want to be on dialysis. At that moment I had just wanted to die. In just in a matter of a day or two my life was completely changed. From Monday night in the emergency room to Thursday morning getting a graft inserted in my arm. My mom, family and doctor talked me into getting the operation. The next day I was released from the hospital. Over the next few days my arm was very sore. Also I did leave my apartment for almost a week. My arm was swollen and I hated the way it looked. Everywhere I went people was asking me about my arm. Most people thought I had been shot and the bullet was stuck in my arm. I really did not like to discuss the situation. So I began to wear long sleeve shirts to cover the graft. A few months had gone past and I got use to graft. The reality of dialysis still had not really got to me yet.
In November of 2003 my doctor told I was going to start dialysis. Then I began to think of ways of getting out of going. November 10, 2003 was my first day of dialysis. I am afraid of needles so I figured it would be the worst day of my life. It was to bad after getting stuck. My doctor and the techs in the hospital were there to comfort me. The first few treatments in the hospital were not as horrible as I thought. After being released from the hospital I started at my first unit. The first treatment at the unit was terrible because I cramped. The worst feeling I have ever felt. Everyone in the unit came to help me. People were rubbing my legs and holding my hand to assure me everything was all right. Over the next six months or so my body began to adjust to the treatments. During those months I had the worst time during my entire illness.
I had to completely change my diet. I was use to eating a lot of fruit and vegetables. Drank a lot of water and juice. Now there were all these food and liquid restrictions. The thing that made this the worst time was my financial situation. I had no money or job but still had rent and bills to pay. My application for social security had been submitted but the process took a few months. While waiting I applied for different types of assistance. Most of the people at the different agencies were not too polite. They act if a person is trying to steal from them. Thankfully my family and friends helped me with the things I needed. Now there was no lower point in my life. For that reason I figured things could not get any worst.
By the spring of 2004 things started to turn for the better. Now I had some income but not a lot. My body and mind had adjusted to the lifestyle of having end stage renal disease. I became more open about my situation. Did not have any more issues talking dialysis or kidney disease. Went back to college to finish getting my bachelors degree. My outlook on the circumstances made me more optimistic at my future. I was able to get listed on a transplant list. Established a great support group. Found out some people have it worst than me that are not sick. Last summer I was accepted to graduate school in New Hampshire. Over the last couple years of dialysis I have gained a lot of weight. I had been putting it to the side. I kept saying I am going to make a goal to lose weight. This past October I went to a Kidney Foundation seminar. The seminar was great and very informative. Shad Ireland was the guest speaker. He was amazing. Mr. Ireland told his life story. I could relate to his story. Also in October I was making plans to go to New Hampshire to visit the graduate school and do a little skiing.
Once I say the video of Shad in Lake Placid I was ever more amazed. Seeing that tape gave me the motivation to start an exercise program. I joined a gym a few days before Thanksgiving. The gym I joined provided a free fitness assessment from a personal trainer. I now go three times a week for an hour to an hour and a half. My exercise routine is cardio, stretching, and resistance exercises. I monitor my pulse and blood pressure while exercising. Since I started exercising my metabolism has changed. I do retain a lot of fluid between treatments. There has not been a lot of weight but I have more energy and sleep better.
Finally, I have accepted my situation for what it has done for me. Now I have broader perspective of life. For the first time in my life I am not rushing. I take everything one step at a time. This condition has made me closer with my mother and family. I now try to accomplish as much as time will allow me. Just will not allow my condition to hinder my life.
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